At the heart of the project … two complementing personalities: Aurélie Martin and Sébastien Tourlet
A few years ago, our paths crossed because of our jobs. We are two bioinformaticians working in the pharmaceutical industry and our jobs consist in biological data analysis. Using computer science and mathematics, we study relationships between molecules and their use in diseases. In no time, we realized that we have got a lot of complementary ideas. Quite naturally, we discussed Aurelie’s disease, spinal muscular atrophy, and simple ways to solve everyday life disability related challenges and future clinical trials. At one point, we had a brilliant idea based on the observation of the lack of interactive research platforms and patient platforms, intended for patients, families, accepting physicians and professionals from the medical community. Yet if we want to advance promising research, each of us has a role to play. Our project has emerged as an obvious idea and we have decided to create our own patients platforms EaseMyDisease where each patient or medical community actor can bring his expertise and experience, to create an ongoing revolution!